Western Finger Lakes Events

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Contact: Susan O’Hearn,
Western/Finger Lakes Regional Coordinator


The new Care Coordination Organizations (CCO) is coming up soon.  There will be several informational forums coming up.  The first one is Wednesday, March 21st 6:50pm – 8pm at Bay Trail Middle School located at 1760 Scribner Rd. , Penfield Ny 14526.  The second CCO informational meeting is being offered twice by OPWDD on Thursday, April 12 at Mary Cariola Center located at 1000 Elmwood Avenue, Rochester NY, door 1, 14620, from 1 – 2:30pm and again from 6 – 7:30pm.    You will need to contact Amy Hoffower at 585-241-5760 to make your reservation for either of the April 12th opportunities.  As new opportunities come up we will keep you informed.

2018 Western New York Conference:

This year the conference with be in Batavia at the Quality Inn on June 28th & 29th.  Registrations will be out very soon, so stay tuned.


Finger Lakes Regional Meeting – Great way to stay CONNECTED!! – CHECK IT OUT – The Finger Lakes Regional Group Meeting is held on the 1st Wednesday of each Month.  We hold two separate meetings on that day.  The first meeting is held from 10:30am – 11:30am & the second meeting is held from 4:00pm – 5:30pm – There are three meeting locations: Elmira; Rochester; and Newark DDRO’s.

  • The next Finger Lakes Regional Self-Advocacy Group Monthly meeting(s) will be on April 4th with guest speaker Amanda Bishi, OPWDD Care Coordination Liaison.  Amanda will be presenting on “Care Coordination Transition”.  You’re welcome to come and invite others to see what we are about and learn more about self-advocacy.
  • Don’t forget to check out The Finger Lakes SANYS Facebook Page by Clicking Here 
    • We would love to hear your stories about good changes in your life that are transforming how you feel about life or informational stories about how you’ve spoken up for your rights as a self-advocate.  For example, Kim shares: “When I was working on my self-direction plan, I advocated for what I wanted”.  How about you, what have you spoken up about and advocated for in your life?  Share with others by writing your experience on our Facebook page.

Speaking Up to Your Representatives: Make your voices heard – SANYS encourages people to make appointments with their representatives, here at home, to talk about issues that are concerning them such as a living wage for Direct Care Professionals (BFair2DirectCare Campaign) and more residential living opportunities.  Click Here for The SANYS 2018 Legislative Platform.

Want to GROW your Self-Advocacy Group and Have Interesting Meetings: For your next regular self-advocacy group meeting, think about having a guest speaker present about the things that are important to the group and invite a friend to attend.   It’s a great way to gain new members and perspectives while learning new things and ramping up the meetings at the same time!


  • SANYS U: It is a Leadership Course for people who want to learn more about self-advocacy and how to be a strong self-advocate. Contact us if your Self-Advocacy Group is interested in taking the SANYS U course. 585/461-8776  Some of the Groups that have been through or are going through the training are; Friends Helping Friends, Supportive Friends, The Power That Be, Handicapables, Advocates Coming Together (ACT), Community Connections, The Powers that Be, Self-Advocates Teaming Together, Independent Choices, Lochland School, Boces II Classes and The Silver Lake Self-Advocates.